Wednesday, November 7, 2012

Eulogy, November 7, 2012


Eulogy for Alice
  
       Five foot two, eyes of blue
                    But, oh!  What those five foot can do!
                    Has anybody seen my girl?

 
When I was a little girl I believed that that song was written about my mother.  I think I knew it hadn’t been written for my mother…but it was definitely about her.  Even though she would occasionally remind me that she was five foot two and a half.

 Hello.

My name is Robin Weir.  I’m Alice’s youngest daughter.  Thank you all for coming. 

When I was small and being chastised for some indiscretion, I remember cheekily asking my mother if she had ever gotten in trouble as a child.  “Never!” she told me, boldly.  Skeptically, I double-checked this claim with my grandmother.  I was suspicious when Grandma suddenly changed the subject with a smile on her face. 

I wonder now which story was making Grandma smile:  Was it the time Alice and her sisters gave the cat a bath, in the ashcan?  Or filled their dad’s brand new car’s gas tank with gravel?  Or could it be when she fell down the chute in the neighbour’s barn and broke her elbow?   Or maybe Grandma was thinking about the time Nan’s Ford Anglia quit after a camping trip in Collingwood.  Alice, Nancy, Joyce and Carol Hepworth Creasey called Grandma to come and get them and spent the next few hours sitting on the hood of the car, eating their way through a huge box of cookies.  What else would you do? 

Alice loved to laugh.  This was evident even as she was being diagnosed with the brain tumours, in early September.  We had rushed down after hearing of her admission to Woodstock Hospital.  When she opened her eyes to see us entering her hospital room, she frowned and said, “I know you.”  I was a little surprised, but I said yes, I’m Robin, your youngest.  She smiled broadly and said, “You’re the bratty one!”  You can imagine my relief at this proof that she really did know who I was! 

We had other funny moments, in these last few weeks:  Once, as Joanne and I were helping her walk, one on either side of her, her feet just quit working.  We all stared at her feet, trying to get them moving with the force of our minds.  No luck.  Suddenly, she began to sing:  “These feet were made for walkin.’”  We laughed and then her feet began to move again.  We laughed with her and sang along.  Who knew that she was a Nancy Sinatra fan?

She accepted the teasing that we dished out with her usual grace, shrugging it off or, more often, delivering “the look.”  It was a look that said, “I’ll remember this.”  Or “careful what you ask for.”  Or even, “Just you wait!”  I believe Bill MacLeod was the last one to receive Alice’s “look.”

She knew her mind, too.  The day of her first radiation treatment, we picked her up at Woodstock Hospital at 10 am and drove to London.  That one appointment lead to two others that day and we didn’t leave Victoria Hospital until almost 5 pm.  Nancy, Joanne and I were exhausted and ready to relax, but Alice piped up from the back seat:  “I’d like to go out for dinner.”  We were quite surprised to hear this and I checked with her, “Are you sure you feel strong enough to do that?”  Her voice got quite a bit firmer and she said, “I am taking you all out for dinner."  There was no room for discussion there, and so we did.  By 6pm we had a text indicating that the nurses at Woodstock Hospital were wondering where she was:  we’d been gone for 8 hours!  We hurried to be back by the 7 pm shift-change.

It is so heartening to see so many people out today.  You’ve all been visiting and sending notes and calling and leaving messages for weeks now.  We have been so buoyed up by your devotion, by your repeated attendance, by your loyalty and your love.  It has made a huge difference to us and to Alice, too.  Even as her health slipped away and she became more inward looking and her perspective became narrower, you kept coming.  You kept including her in your news and you kept sharing your photographs and funny stories and daily goings-on.  You kept her ‘in the world.’  You kept her abreast of the details of your households, committee meetings, sports practices and school schedules.  You brought your babies to explore her room and entertain her.  You brought your knitting and baking and drawings and music and favourite stones.  You brought flowers from your gardens, and cards and letters from your hearts.  You even brought chocolate.

Thank you.

All of this, these moments and gestures and gifts, were so valuable to her, and to us.  They reminded us that we are not alone, that we are not adrift on this ocean of grief.  You have kept us all connected and kept us moored to our communities and our life-lines.  You have reminded us that while it takes a village to raise a child, it may take several villages to accompany someone out of this life. 
 
Thank you.  Thank you.

 

Sunday, November 4, 2012

Update #24, November 4, 2012

Hi everybody.
 
This will be the last update note, as Alice died this afternoon.  She was peaceful, in no discomfort and she was surrounded by family members.  We all had time to sit with her and wish her well on her journey.
 
Thanks so much for your good thoughts and prayers and visits and messages and support.  Every little bit helped and made a difference to her, and to the rest of us, too.  You kept us all going and the value of that devotion cannot be underestimated.  If it takes a village to raise a child, I think it must also take a village to accompany someone out of this life.  Well done, all of us.
 
Arrangements:  I believe that we'll be having visitation on Tuesday afternoon and evening at Betzner's Funeral Home in Thamesford.  http://www.betznerfuneralhome.ca/home.html  Directions, etc are on their website.
 
I think the funeral will be at Westminster United Church in Thamesford on Wednesday--but this has yet to be confirmed.  I'll advise as we know for sure.
 
Check the London Free Press, Woodstock Sentinel-Review and the St. Marys Journal-Argus for details.
 
I'm heading to do some laundry and to bed.  We're heading back to Embro in the morning.  Not sure when we'll be back--probably by Friday.  If you need to get in touch with us--email or Jo's cell is the way to go.
 
Thanks again, everybody.
 
love, Robin.

Update #23, November 1, 2012

Hey there.
 
We were down to Woodstock today and visited Alice.  She is very weak now, and is almost unable to move around.  She shifts her feet a bit in the bed, but doesn't move her hands much and even chewing has become difficult for her.  She is eating soft foods now:  pudding, yogurt, applesauce, ice-cream.  Yesterday she had some egg salad--or scrambled eggs, I forget which.  Today was an ice-cream day.  It was warm in her room at the hospice, so why not?  She had trouble using a straw today, so they offered her a spouted cup (like a 'sippy cup') and things seemed to go much better with that.
 
She is very quiet--only has a few words a day.  Her eyes are bright, however and she watches the goings-on carefully.  She is sleeping much of the time--even between her 'meals' of yogurt and ice-cream, she would nap for an hour or two.
 
Her bird-feeder is a busy place now and there is a healthy debate about the type of birds that are visiting:  sparrows?  what kind of sparrows?  finches?  Aunt Joyce identified a 'pine siskin' but I think she might have made that up!
 
We visited for a while with Aunt Nancy -- Joyce and Clarence were there this morning.  Joyce Montgomery popped in this afternoon--I think she's a friend from Teacher's College.
 
Doug has not been in for a couple of days:  he fainted again, this time while in the passenger seat of his brother's car.  Jack just kept driving but drove him to the Emergency Department of Woodstock Hospital.  Doug was admitted and tonight will be his second night there.  He's having lots of tests and is meeting with a physiotherapist, I think.  Hopefully they can address whatever it is that is causing his blood pressure to be so fearfully low.
 
Please keep both of them in your thoughts.  Take care.
 
love, Robin.
 
 

Tuesday, October 30, 2012

Update #22, October 27, 2012

Good evening.
 
We just got home from Woodstock.  A very nice drive home--not like the rainy, hazy, foggy drive out this morning!
 
Arrived at Sakura House around noon.  Alice was sleeping but awoke as we came in.  Daughter-in-law Elaine and Doug were there;  Trish Weir and her mom, Mary McArthur were just leaving.  We got busy preparing lunch--warmed up some of Alice's own recipe:  Hearty Casserole (also known as 'slop', 'skub-gub' and goulash in various households!).  She and Doug split it but neither had much appetite--there are still leftovers in the fridge.  We plied both of them with water and Doug with Gatorade, too, reminding each of them to drink through out the day.  Strangely, each time the chocolates and fudge came out--neither one turned them down!  Hmmm...
 
Alice slept most of the day--she seems to be napping after every meal.  Eating takes a lot of concentration.  She truly doesn't move much anymore.-- didn't even try to feed herself today.  She lay pretty still, with her hands under the covers.  It seems that she is getting smaller.  Physically, yes, a little, but I mean more in terms of her personality.  Her eyes are still bright, but she rarely speaks.  She may nod or give yes or no answers, but choices are hard for her and open-ended questions are almost impossible.  It's hard to get a feeling for what she would like for lunch.  Sometimes her eyes will flicker and I can get some information from that, but often, her face is placid and blank.  Then, my face is clueless!  I can guess some things, based on her likes and dislikes and fortunately, she's never been a complainer.
 
She seemed to spend a lot of time watching out the window and maybe keeping an eye on the bird feeder.  A sparrow found it yesterday and s/he was back today.  In fact, this little bird spent a good part of the afternoon tucked into that feeder.   Sometimes eating, but sometimes I think s/he was napping and guarding her/his new turf!  And staying out of the rain, of course.
 
She has a gorgeous new fleece blanket, in soft rainbow colours, made by her sister Joyce.  It's thick and warm and each person who came into the room couldn't help but stroke the cozy fabric.  It was quite nap-worthy and Alice tested it out several times today.  I'm glad to report that it performed very well!
 
We brought in some cds that we thought she might like.  Played one with bird sounds and soft classical music.  Look through the pile next time you're in and put one on, if you feel like it.  They are hiding under the bag of chocolates.
 
I'm going to try going up for an afternoon, every second or third day and driving home the same day.  This way, I can sleep in my own bed every night.  This gives me a better chance of having consistent sleep.  We'll see how this goes for the next week or so.
 
Okay--I'm off to put laundry away.  Curl up with a good book.  Batten down the hatches.  Drink your water!!!
 
love, Robin.

Update #21, October 25, 2012

Hello all!
 
I've received a few notes wondering how things are going and when was the next update coming?  I think the sub-text there was, "Did I get dropped from the list??"  Relax--no one got left out (that I know of--email me if you don't get this update!).  I was having a sad, cranky week and decided not to inflict myself on my family.  Jo?  Too bad for her, she's stuck with me!
 
Jo and I went to Woodstock yesterday, in the fog.  Alice had lots of visitors--brother-in-law Bob was there with Doug and Trish Weir came in later.  Alice was quiet, but bright-eyed and listening. She always smiles broadly when Joanne comes in--Wednesday was no exception. 
 
I did a presentation to Embro's UCW that night, on working with developmentally handicapped people.  My thesis was that many people think it's a sad job, so Jo and I were brainstorming funny anecdotes from group home life.  There are truly many more amusing stories than sad ones, so it seemed like a good place to start (of course, there's quite a pile of frustrating stories, but we won't go there...)  So we regaled Alice and Trish with tales of 'our guys'--Bill wearing his hard hat to bowling because the weather person had called for hail!  Susan eating breakfast at 9:30 pm because she didn't have time in the morning!  Margaret insisting that she needed small bills at the bank--even when withdrawing $300 for clothing shopping (this was back in the day when we had one and two dollar bills)!  My little talk went well--the ladies of Embro were very well-behaved and asked very thoughtful questions about funding and daytime activities and staffing structure.  And they gave me shortbread and hot chocolate!  The gift bag was quite a surprise and full of my favourite things. 
 
Alice has settled in nicely to Sakura House, I think.  It has taken us a while to understand their routine.  It is so relaxed that there are not 'regular' meal-times.  If there are visitors, it is expected that they will wander down to the kitchen to request a meal on behalf of the resident.  Most of the meals are frozen, from Meals on Wheels, so prep time is not an obstacle.  There are about 10 different entrees, and almost that many soups.  Fresh baked cookies are always available, as are coffee and tea.  There is quite a variety of sandwiches and many options for breakfast.  Family can buy a sandwich for $3 and a hot dinner for $5.25.  Alice can have anything--she has only to ask.  This was the piece that we were missing--the resident or the visitors have to initiate meal-times.  Quite different from the regimented schedule of the hospital.  If no one is visiting, a staff member or volunteer will go down and ask if she's hungry.  She never admits to hunger, but she can always eat!  I think because she has so many visitors, this routine did not get established right away.  Hopefully we're on the right track now.
 
Today was beautiful, so Joyce and I took Alice outside for a rest in the sun.  We wheeled her out in her bed and found a place on the edge of the patio where the sun could shine on her face, but not in her eyes.  She turned her face into the warm light and napped.  I almost expected to hear her purring, like a cat!  The breeze was warm and the view was of fields and gardens.  What could be better?  We sat outside for over an hour, in a chickadee flight path.  We seemed to be parked between a feeder and some other important chickadee location because they would buzz and swoop between our heads!  My sister had been visiting Alice this past weekend and brought her a bird feeder for her window.  The chickadees haven't found it yet, but it's close to their flight path, so I'm sure they'll discover it soon.  Sitting outside was a balm to all of us.  Another family saw us out there and came out to enjoy the weather, too.  It was nice.  It felt kind of normal.
 
Some of the staff and volunteers discovered something today, about my mom and her sisters.  Of course, it's nothing new for them when people walk up and say, "Are you really triplets?"  They even had a request for a photograph!  No one asked for autographs, but I'm sure that's coming!
 
Doug has not been feeling well, lately.  His blood pressure is fearfully low and he fainted this morning, while opening the front door to his brother.  Thank goodness Jack was there!  Doug came around and refused to go the hospital (!).  There is water and gatorade in Alice's fridge, along with some salty meals in the freezer.  We can all help him stay a little healthier.  If I am feeling cranky and overwhelmed with the situation, I cannot imagine the depth of Doug's feelings.  I think eating regularly and staying hydrated are just not making his priority list, right now.  We told Alice that he wasn't feeling well and was going to nap for a couple of days.  Didn't seem any point in burdening her with the details.
 
Okay.  I must be off.  Cross your fingers for more lovely weather.  Take care of yourselves.  Keep visiting.
 
love, Robin.

Friday, October 19, 2012

Update #20, October 18, 2012

Good afternoon, everyone.
 
Alice moved to Sakura House today.  She is in room #1, which you might think would be near the front door--not so.  It's the furthest down the hall.  She has a lovely room with lots of natural light and a quilt with hydrangeas on it.
 
When we arrived at 1 pm or so, her name had already been put on the name-plate outside her door.  What a nice touch to make us feel that it was her space, not just a bed that she is occupying.  The nurses and volunteers were very warm and welcoming and we met more people than we could keep track of.  There seems to be some levity with the official name tags:  I saw Minnie Pearl  and Dora the Explorer, complete with i.d. photos!  I'll keep you posted on any other 'sightings.'
 
Doug quickly claimed the beautiful lazy-boy chair with the stand-up function (You know what I mean:  It will help you to your feet, by rising up underneath you and lifting you to a standing position!)  I think they may have to frisk Doug on the way out, if he gets used to it.
 
I'm sure that Alice will be sleeping most of today--you will remember that ambulance rides are not her favourite thing--but I'm sure she'll be up for short visits tomorrow.  Remember to talk slowly with her and not to expect too much in the way of answers.  She may have them, if it's a good moment. 
 
She had a pretty challenging day yesterday--quite fatigued and was having trouble manoeuvring the fork and tea cup efficiently.  She was in better shape this morning and seemed quite pleased to be at Sakura House.  She watched us unpack her things and discuss placements for plants and flowers.  She smiled when I put Isabel's guardian angel picture up where she could see it.
 
Hope you're all staying dry and warm this afternoon. 
 
love, Robin.

Tuesday, October 16, 2012

Update #19, October 16, 2012

Hello all.
 
I was home today, instead of in Woodstock, as I thought I felt a migraine coming on.  Must have kept my head well under the covers as it didn't find me.  Small mercies...
 
Aunt Nancy let me know this evening that Alice has decided to move to Sakura House.  She'll be going by ambulance on Thursday in the late morning and whomever is around (Nan and I for sure) will move her walker, clothes, flowers, cards, etc.  Oh!  And the chocolates, too.  For sure, the chocolates need to get there safely.
 
Sakura House has no rules, beyond 'no loud partying at 3 am' as the volunteer who gave us the tour on Saturday told us.  Visitors are welcome any time at all, provided that the resident is agreeable to having company.  There are lots of rooms and corners to sit quietly in or to chat, if Alice needs a nap or a quiet moment.  It is a beautiful property.
 
Phone number there is 519 537 8515. 
 
Websitehttp://von.ca/NationalDirectory/branch/pages.aspx?PageId=482&BranchId=35  The illustration of the house on the website is a view from the back yard.  Looks a little different from the front.
 
Address:  #715180 Oxford County Rd 4,  RR 5,  Woodstock ON  N4S 7V9 
 
Directions:  If in Woodstock, drive through town east on Dundas St to Bond's Corners (last corner before the 401).    Turn left onto County Road 4 and drive about 2 km north of Dundas St.  You'll see a long brown rail fence (in need of some paint) on the right and it will lead you to Sakura House's front gate.
Devonshire will also get you to County Road 4.  Turn left and look for Sakura House almost immediately, on the right.
 
I used Mapquest and GoogleMaps to try to locate Sakura House.  No luck.  Mapquest had no idea and Google tried to offer directions to the VON office on Ingersoll Ave, while taking you to Ingersoll Road, while claiming that you would end up on County Road 4!  Ah, technology.  Still hasn't figured out small towns and rural addresses.  Just a warning...
 
I find I am relieved that Alice has decided to move.  Not because her care is not excellent in the hospital--it absolutely is.  But because this signifies to me that she is accepting her death as inevitable and close.  For someone as stoic as Alice, I sometimes wonder if the pivot point between 'fighting the disease' and 'accepting the situation' is a painful challenge to identity and purpose.  I'm glad that it does not seem that way for her.  If she can accept what is happening, then so can we.  To palliate means 'to ease'.  Did you know that?  Makes a lot of sense, eh?  If moving to Sakura House eases the way for her, then it will also ease the way for us.
 
We'll get through this.  Stay close.
 
love, Robin.